Exhibitor Details
BBS UK (Bardet Biedl Syndrome UK)
BBS UK (Bardet-Biedl Syndrome UK) is the only registered charity supporting people with Bardet-Biedl Syndrome (BBS), their families, and carers in the UK. BBS is a rare, genetic disorder, which affects approximately 1 in 100,000 babies born. We are a user-led organisation, represented by adults with BBS and parents of children with BBS.
Our aims are ‘to preserve and protect the health and promote the welfare of persons who have BBS and to advance the education of the medical and educational professionals and the public about BBS’.
We support over 640 people diagnosed with BBS, their parents, carers, and siblings as well as professionals involved in all aspects of the care and support of people with BBS in the UK.
Our services include the NHS funded BBS clinics, advice service, annual family conference weekend, newsletters and publications, and a supportive community.
Dovercourt
Harwich
Essex
CO12 4UP
